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That their light may
always shine...Thank you for
joining us at 8:00 p.m. on August 12, 2006, for the Third Annual
Nationwide SMA Candle Lighting Event. August is SMA Awareness
month, and as such, we choose to use the 2nd Saturday in August every
year as a time to reflect on those lost, as well as to honor those
living daily with SMA. As this event continues to grow, we hope to
bring awareness to the public about the disorder as well as unity to the
families living with it, as we all join to spread the light of our
candles around the world. We hope you will join us next year for the
4thd Annual
Nationwide SMA Candle Lighting.
Spread the light-and the word.
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"We light this candle in honor of all the SMA
angels and for those waiting the cure." Abraham Silva, SMA
type 2 |
Murphy Potter in honor of her brothers...
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John, Kim, Charlie &
Lily Sykora |
Kaylee Stants lights a candle in honor of her
brothers
Zeke and Morgan Saville with the angel candle,
while Clayton remembers behind the lens...
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I spread the word around
the Syracuse area and my family. This is a very special
time for us. There is power in prayer! Billy
Spiegel's grama-Pamela Pickard. |
God's Candle--8/12/06 at Oswego Shores, by
Pamela Pickard
Here is a picture of
Frank and Beth Pruitt, with lit candles in honor of and in memory of
all those affected by SMA.
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The
candles lit by Malorie Fox and family... |
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Angel Christina Slack with her candle lit... |
"In memory of Nathan
and in honor of Lily....and the countless others who have
touched our hearts and our lives." Nathan, Lily & Amy
Barnett |
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Madison Reed and family light
candles and release balloons in honor of Cassie Swanson
and so many angels... |
Kyle, sma type 1, lighting his
candle for all the brave sma children around the world and for those
who have passed into the perfect world. Also, in late memory of our
wonderful Princess Grace Coggin.
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Love, the Boguhn family: Kali, Jenna, Mary & Mya |
Victor Alvarez lights his
candle
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Some of the neighborhood kids joined Samuel in the
candlelighting...Terri Sawyer & Family/Friends |
Ethan Takacs (SMA 1) with
his candle
Remembering Timothy Weber
4/22/01-1/18/06 and all sma angels in heaven and on earth.
Skylar Saranchuk (SMA 1)
and her candle.
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We had about 30 people who attended - we did a
balloon release (with a tag with a name of an
sma child attached) and sang Happy Birthday to
Austin C who is from here who passed away last
October. We had two tables with pictures of
some of the children who passed way with a LED
candle in front of it then a real (wax) rose
candle in front of that - everyone had a candle
and lit their light from one of the candles in
front of an SMA child. We announced each
child's name, then had a moment of silent prayer
for them and all the earth angels. Next year we
will have this at the new Miracle accessible
playground! Michelle Worrellia, Annette,
Carl, Kenny & Madison Reed
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Miss Sophia...
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